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HB1770Introduced in the House

INS-HEALTH CARE/RARE CONDITION

IntroducedHouse Rules

Introduced by Lindsey LaPointe, District 19

What does this bill do?

Plain-English breakdown

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Official description

Amends the Illinois Insurance Code to require an insurance policy to provide coverage for medically necessary treatments for genetic, rare, unknown or unnamed, and unique conditions, including Ehlers-Danlos syndrome and altered drug metabolism. Provides that an insurance policy that provides coverage for prescription drugs shall include coverage for opioid alternatives, coverage for medicines included in the Model List of Essential Medicines published by the World Health Organization, and coverage for custom-made medications and medical food. Provides that an insurance policy that limits the quantity of a medication in accordance with applicable State and federal law shall not require pre-approval for the treatment of patients with rare metabolism conditions that may need a higher dose of medication than what is otherwise allowed within a time frame or prescription schedule. Provides that the burden of proving that treatment is medically necessary shall not lie with the insured in cases of rejections for filing claims, preauthorization requests, and appeals related to coverage required under the Section.

Where it stands

Rule 19(a) / Re-referred to Rules Committee

March 21, 2025

How did lawmakers vote?

No recorded vote is available for this bill yet.

What do people think?

Citizen Voice

How would you vote on this bill?

An unofficial public opinion poll. It does not affect the bill or the official vote.

One response per device. Location is self-reported and not verified. Results are informal and not a scientific survey.

Bill history

  1. Filed with the Clerk by Rep. Lindsey LaPointe

  2. First Reading

  3. Referred to Rules Committee

  4. Assigned to Insurance Committee

  5. Added Chief Co-Sponsor Rep. Nicholas K. Smith

  6. To Insurance Main Subcommittee

  7. Rule 19(a) / Re-referred to Rules Committee

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