HR0382Introduced in the House
BATTEN DISEASE AWARENESS DAY
Introduced by Janet Yang Rohr, District 41
What does this bill do?
Plain-English breakdown
Writing a plain-English summary of this bill… this can take a few seconds the first time.
Official description
Declares June 9, 2025 as Batten Disease Awareness Day in the State of Illinois in order to recognize and bring awareness to the rare disease population, including those living with Batten disease in Illinois, and to recognize the heroic and tireless efforts of Dr. Elizabeth Berry-Kravis and her esteemed colleagues at Rush University Medical Center as they attempt to save children afflicted with Batten disease by searching for treatments and a cure. Commends Charlie Sims for advancing the scientific development of treatments for Batten disease for children everywhere, his family and friends for valiantly facing the difficulties of Batten disease, and the ongoing efforts of Team Charlie in their continued work of finding hope, giving love, and being good.
Where it stands
Referred to Rules Committee
May 27, 2025
How did lawmakers vote?
No recorded vote is available for this bill yet.
What do people think?
Citizen Voice
How would you vote on this bill?
An unofficial public opinion poll. It does not affect the bill or the official vote.
One response per device. Location is self-reported and not verified. Results are informal and not a scientific survey.
Bill history
Filed with the Clerk by Rep. Janet Yang Rohr
Referred to Rules Committee
Verify the information
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