A01296Introduced in the Assembly
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Introduced by Amy Paulin, District 88
What does this bill do?
Plain-English breakdown
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Official description
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Where it stands
substituted by s1287a
May 29, 2025
How did lawmakers vote?
AssemblyStage: Assembly Rules Committee: Favorable · May 29, 2025
27
Yes
0
No
4
Absent or Not Voting
31 assemblymembers recorded in this Assembly vote. Colors show vote categories only, not whether a vote was good or bad.
What do people think?
Citizen Voice
How would you vote on this bill?
An unofficial public opinion poll. It does not affect the bill or the official vote.
One response per device. Location is self-reported and not verified. Results are informal and not a scientific survey.
See how each assemblymember voted
| Assemblymember | District | Vote |
|---|---|---|
| Doug Smith | 5 | Yes |
| Charles Lavine | 13 | Absent |
| Edward Ra | 19 | Yes |
| Nily Rozic | 25 | Absent |
| Edward Braunstein | 26 | Yes |
| Andrew Hevesi | 28 | Yes |
| Alicia Hyndman | 29 | Yes |
| Vivian Cook | 32 | Yes |
| Clyde Vanel | 33 | Yes |
| Catalina Cruz | 39 | Yes |
Bill history
referred to health
amend and recommit to health
print number 1296a
reported referred to ways and means
reported referred to rules
reported
rules report cal.291
ordered to third reading rules cal.291
substituted by s1287a
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