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A07845Introduced in the Assembly

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Passed

Introduced by Steve Stern, District 10

What does this bill do?

Plain-English breakdown

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Official description

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Where it stands

signed chap.478

October 17, 2025

How did lawmakers vote?

Assembly votes

5 recorded votes · each counted separately

Senate votes

1 recorded vote · each counted separately

SenateStage: Senate Floor Vote - Final Passage · June 10, 2025

58

Yes

0

No

5

Absent or Not Voting

63 senators recorded in this Senate vote. Colors show vote categories only, not whether a vote was good or bad.

What do people think?

Citizen Voice

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See how each senator voted

Bill history

  1. referred to health

  2. reported referred to codes

  3. reported referred to ways and means

  4. reported referred to rules

  5. reported

  6. rules report cal.455

  7. ordered to third reading rules cal.455

  8. passed assembly

  9. delivered to senate

  10. REFERRED TO RULES

  11. SUBSTITUTED FOR S6413

  12. 3RD READING CAL.1540

  13. PASSED SENATE

  14. RETURNED TO ASSEMBLY

  15. delivered to governor

  16. signed chap.478

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