S01287Introduced in the Senate
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Introduced by Roxanne Persaud, District 19
What does this bill do?
Plain-English breakdown
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Official description
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Where it stands
returned to senate
March 10, 2026
How did lawmakers vote?
Assembly votes
1 recorded vote · each counted separately
Senate votes
4 recorded votes · each counted separately
AssemblyStage: Assembly Floor Vote - Final Passage · March 10, 2026
143
Yes
0
No
7
Absent or Not Voting
150 assemblymembers recorded in this Assembly vote. Colors show vote categories only, not whether a vote was good or bad.
What do people think?
Citizen Voice
How would you vote on this bill?
An unofficial public opinion poll. It does not affect the bill or the official vote.
One response per device. Location is self-reported and not verified. Results are informal and not a scientific survey.
See how each assemblymember voted
| Assemblymember | District | Vote |
|---|---|---|
| Tommy Schiavoni | 1 | Yes |
| Jodi Giglio | 2 | Yes |
| Joseph DeStefano | 3 | Yes |
| Rebecca Kassay | 4 | Yes |
| Doug Smith | 5 | Yes |
| Philip Ramos | 6 | Yes |
| Jarett Gandolfo | 7 | Yes |
| Michael Fitzpatrick | 8 | Yes |
| Michael Durso | 9 | Yes |
| Steve Stern | 10 | Yes |
Bill history
REFERRED TO HEALTH
AMEND AND RECOMMIT TO HEALTH
PRINT NUMBER 1287A
1ST REPORT CAL.487
2ND REPORT CAL.
ADVANCED TO THIRD READING
PASSED SENATE
DELIVERED TO ASSEMBLY
referred to ways and means
substituted for a1296a
ordered to third reading rules cal.291
died in assembly
returned to senate
REFERRED TO HEALTH
AMEND AND RECOMMIT TO HEALTH
PRINT NUMBER 1287B
1ST REPORT CAL.283
2ND REPORT CAL.
ADVANCED TO THIRD READING
PASSED SENATE
DELIVERED TO ASSEMBLY
referred to ways and means
substituted for a1296b
ordered to third reading cal.47
passed assembly
returned to senate
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