S06413Introduced in the Senate
Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
Introduced by Jessica Scarcella-Spanton, District 23
What does this bill do?
Plain-English breakdown
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Official description
Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
Where it stands
SUBSTITUTED BY A7845
June 10, 2025
How did lawmakers vote?
SenateStage: Senate Floor Vote - Final Passage · June 10, 2025
58
Yes
0
No
5
Absent or Not Voting
63 senators recorded in this Senate vote. Colors show vote categories only, not whether a vote was good or bad.
What do people think?
Citizen Voice
How would you vote on this bill?
An unofficial public opinion poll. It does not affect the bill or the official vote.
One response per device. Location is self-reported and not verified. Results are informal and not a scientific survey.
See how each senator voted
| Senator | District | Vote |
|---|---|---|
| Anthony Palumbo | 1 | Yes |
| Mario Mattera | 2 | Yes |
| Dean Murray | 3 | Absent |
| Monica Martinez | 4 | Yes |
| Steven Rhoads | 5 | Yes |
| Siela Bynoe | 6 | Yes |
| Jack Martins | 7 | Yes |
| Alexis Weik | 8 | Yes |
| Patricia Canzoneri-Fitzpatrick | 9 | Yes |
| James Sanders | 10 | Yes |
Bill history
REFERRED TO HEALTH
REPORTED AND COMMITTED TO FINANCE
COMMITTEE DISCHARGED AND COMMITTED TO RULES
ORDERED TO THIRD READING CAL.1540
SUBSTITUTED BY A7845
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